EEG/EKG Updates at bottom 😀
This week has been CRAZY; well ok our house is normally crazy but it was over the top this week.
My birthday was Monday, I went to do intern hours, and had a phone interview with Social Security to discuss getting SSI for Lil Man. Then Tuesday was Lil Man’s pre-anesthesia appointments, for his procedure tomorrow; Wednesday was an all day work day for me and received a call that my interview for next week wanted to reschedule for today. (yea, a day’s notice) So obviously today was the interview (more on that in a minute) but we also had speech this morning and snuck into OT (just a cancellation, no long term yet).
So this interview, it was great! It was in Belltown (near Pike Place Market) and is an overnight shelter for homeless women, I should know something within 10 days.
But, the best part was after parking (ugh, I hate those prices) got out and paid, on my way back to put the ticket in the window I got hit on.
A homeless guy comes up tells me I have “great legs” (thank you soccer and Tae Kwon Do) and asks if I’m single. I was ok and even flattered with that, then he asked if I had socks in my car for him and he wanted to see in the van at this point I got a little weirded out thanked him and headed off to my interview across the street.
Lil Man has been doing great, we have been sleeping from 9:30-10ish until about 9 in the morning, OMG that feels good.
Speech today went wonderful, his therapist is completely on board and willing to talk to the other SLP/behavioral specialist so we are moving ahead with her and getting materials to create a picture book and implementing it and continue to work with words.
We also got to see Melissa the OT who did his evaluation since another client canceled for today only. We worked on playing in shaving cream (he doesn’t like his hands messy, and only plays in the tub like a pool doesn’t like hand-washing/towels, etc), feeding a puppet dog (interactive play) and he was doing great with this. He started out opening the dog’s “mouth” and then he started putting in the puppy’s “paw” (like we do with cookies, etc) and watching puppy feed himself.
It has been a great week and Lil Man (although we had a few complete meltdowns) has been a wonderfully happy boy, flapping and jumping even giggling.
But tomorrow he goes in for a sedated EEG/EKG and because we don’t have a baby-sitter I have to go by myself and hubby & Lil Miss will be staying home. So I am bit nervous and worked up, hopefully I can stay calm enough that I can get some homework done while he’s under. (Or, I’ll just take Ryan’s advice and lay my head right here in his lap 😉 )
And now, on to why you all came here Special Needs Ryan Gosling. (Thank you Sunday for hosting!)
(Ryan is such a gentleman)
(Oh man, am I blushing.)
Go over, link up with Sunday, and check out all the other fantastic Special Needs Ryan Gosling posts!
Thank you all for the well wishes about the EEG. I am so thankful to be here at Seattle Children’s instead of OHSU like last time.
The anesthesiologist is AMAZING, Lil Man’s team was communicating by e-mail, literally, all week to make this as successful and non-traumatic as possible for all of us.
So the anesthesiologist had Cars (Lil Man’s kryptonite) on cue, let him watch it the whole time (Lil Man even let Dr. Long [anesthesiologist] carry him from the pre-procedure room to the procedure room!), and then Dr. Long slipped the mask on to his face while he happily watched the movie. I was there the whole time and even helped get him laid down (he was snuggled in Dr. Long’s nap with the mask on to go to sleep :D) there wasn’t a single sniffle, hiccup, or scream.
Compared to last time I would fly from anywhere to have this team for Lil Man, they are with a doubt amazing and sensitive to his needs. Typically kids can only have 1 item [blanket, paci, whatever], Lil Man was allowed to keep his blanket, McQueen,and a paci. They worked hard to make this successful.
I will see in about an hour how recovery is going (the procedures runs until 12:30ish) but I am sure they will do just fine with him and this trip will not scar Lil Man like the last surgery/procedure trip.
It all went well for the most part, I got paged right at 12:30 pm to come back and see him in recovery. As soon as they opened the doors to the procedure center I heard him screaming (that’s normal for him when he wakes up at anytime), we got his IV out and all the electrode leads off, and got him dressed in his spiderman ‘jamas.
That’s when I realized his blanket was gone, an orderly put it in with the hospital linen and it had already been picked up and taken away. They are contacting the linen group telling them it is there and if they see it to send it back and they will get it to us. But, I doubt anyone will find it, and that means we have had to implement Operation:Blanket Replacement.
I have several field operatives in Central FL (it was a blanket from hubby’s high school) looking for it, and they are under strict orders to capture the first one they see and have it transported to us (on our dime of course) to try and maintain some sense of normalcy for him, as that was his favorite blanket and he used it everynight to go to bed.
Crossing my fingers we can find a good replacement and until it can get here his attitude won’t be to bad and that he will be able to sleep without for a bit.