Tag Archives: Update

I am a terrible blogger….

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I have been on a bit of an impromptu hiatus.  I needed the space, I needed to breathe,  I needed to find me in the world.

Although I still haven’t completely succeeded in the last one I am well on my way.  I have forged my own path, I have began to become the person I was meant to be, doing the things I was meant to do.

A quick update; Lil Man is doing well.  He is now in school and minus one escape to the road is doing great there with lots of progress.  Lil Miss is full of the awesome and is doing amazing in school; actually the only concern I have is how far ahead she is and the behavior we could see if she becomes bored in classes. Hubby is awesome, he got a promotion at work to Loss Prevention and is loving every minute of it (this being the guy who threatened to greet my uncle, who happens to be a cop, as “The Man”). 

I have found a new job, one that appreciates what I bring to the table and allows me to flourish working with this population.  I went from young kids (6-12ish) to working with at-risk teen girls.  I am in love, I get to use my knowledge and training in sexual assault and domestic violence and truly grown as a person and a professional here.  As of today I am officially a supervisor, after being with the company for only 4 months, it’s a great feeling.

I completed my BA in Psychology (graduated December 14th) and am going back to class in a few weeks, I am hoping to get a second BA in before I start grad school–if I am accepted–in the fall.

2013 is looking bright, I can’t wait; I am excited to be where I am but even more excited about where I am going and where I will end up.  I have set a few “resolutions” for myself, although they are more like goals.

One, being starting to attend church.  With my work schedule this maybe hard but I am hoping to make it once a month.  I have been longing for and searching for my spiritual home for awhile, a bit deterred of following the religious/church path.  Then I began to look, again, into the Episcopal church; I need to go on a Sunday and such but, fingers crossed, I think I may have found my home in the Episcopal church at a congregation about 20 minutes from home.

Second, I would love to participate in a 5k for charity this fall.  So getting myself up and moving is going to be key, thankfully I have a bunch of girls at work that are willing to help keep me motivated.

I have also set goals such as reading 30 books this year, I want to get back to blogging and writing.  I would also love to buy a house this year (although this is very much up in the air at the moment).  But most of all I want to enjoy my time, I want to appreciate all that is happening and all that will happen.  I look forward to finding my zen

 

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I can’t even think of a title…

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Well, it has been too damn long; not sure how long as I haven’t checked the date of my last post, but I just know it’s too long.

The past while has been a bit hellacious; dealing with school, idiot family members we live with, special needs parenting, and the parenting of my mini-me.

To start school; dude, I am 18 weeks away from having my degree and I am unconcievebly thrilled I am this close to being done with my bachelor’s.  Yet at this point when I should be so excited and feel so close to all my hopes and dreams (including, having a graduate degree by the time I am 30–which I am right on track for) is when I feel the furthest away.

This segways nicely into the idiots we currently live with.  My husband’s Uncle chose to quit his job and do car tint (a job he has never done nor knew how to do) free-lance. 

This means he had to buy all the equipment and supplies to tint without guarantee of jobs.  Yea, genius.  My sister-in-law moved up on the 4th of July; supposedly was going to make my life easier, help with the kids so I could sleep after work (YAY graves) and get homework done.

Yea, not happening.  I had exactly 2 conditions to her living with us without concern of her paying us anything.  Help with the kids (ya know, actually help) and be enrolled in school.  The first being a constant battle, the second she hasn’t even applied to school yet, so yea.

These two on their own would drive me insane; together I feel like I am in a constant state of WTF? moments.  My husband and his uncle decided we should move (which I supported), the move took us 30 minutes south of our current jobs (mine and hubby’s) and reduced our bathroom count to 1 instead of 2. 

So quick re-cap; uncle “self-employed,” sister-in-law suppose to be secondary care-taker to kids, 30 minutes from work (instead of 5), me working full-time plus school, 6 adults and 2 kids living in a 4 bedroom house with ONE bathroom.

So now that we live in this house, in the same town as my abuser and father live (yea, we are on a fuckin’ role), I have to leave for work prior to hubby getting home. Thus, SIL really needs to be helping with kids which is in no way occurring without pulling teeth.

Nearly a week ago I am leaving for work at 10pm, like normal, knock on SIL’s bedroom door and tell her Lil Miss is still awake is on the couch playing computer games (she was getting a break because she had done really well since Lil Man had been melting down for about 2hours before I had to leave). 

I make it out the door, almost to the truck before I hear Lil Miss just screaming and crying (she missed daddy and I was leaving after all).  I waited a moment thinking “SIL will get her,” she’s still crying; so I go back inside.  SIL had never even opened her damn bedroom door to tell Lil Miss to come lay on her bed; which is all she would have had to do.

Literally my SIL didn’t get up, walk less then 10 feet to console her niece! Furious does not begin to describe my emotion.

Oh and prior to moving into this house (literally 2 days before moving) the Uncle and SIL had done a yard sale, took part of that money and bought fucking concert tickets to Iron Maiden.  Yep, you read that right no need to re-read it, promise.

Through this all Hubby and I have had to pay all the bills, and Uncle and SIL still have the audacity to be annoyed and pissy about shit. 

Now, because of having to pay all the pills, the finances aren’t in place for me to be able to take my GRE (a $200 test) and apply to grad schools (do you know how much application fees are?! OMG!).  So, if I am lucky I can start in 2014; that is if the finances work out by then.

Ok, to the kids; Lil Man is officially 3 (birthday was on Saturday).  This birthday had to be the most difficult for us so far; when his sister turned 3 she got a bike and was able to really enjoy her birthday. 

He still doesn’t have the balance or coordination to ride a bike, and most of the ride on toys or trikes are only up to 40lbs (which he almost weighs now).  He couldn’t care less about birthdays; presents are too over stimulating so we don’t wrap them, just keep them hidden until after cake and give them to him.

Lil Miss is so much like me. She tries her best to interact with Lil Man and make sure he stays out of trouble. She also spends a lot of her time interpreting for Del.  I love her and that she is so helpful, but I also know she has to just be a kid; I mean she is only 4.5. 

But beyond that, Uncle and SIL want little to do with her.  They prefer to hang out with Lil Man; after all, he is still a cute “baby” tantrums and all (which now include severe head-banging).  Lil Miss is just me in a small body.

I have taught her she has control over herself and her body.  I have suck out doctors that allow her to make decisions during exams (like telling them she doesn’t want to take off her pants),  I have worked to allow her to feel free to tell an adult “no” when appropriate (some things are non-negotiable, others are very negotiable).

But, to Uncle and SIL it just looks like she is spoiled; and often hubby and I argue over it.  She is strong and I refuse to parent that out of her.  She now accepts when I tell her she can’t have something from the store (she may ask me for 8 MILLION things but she accepts no every time, without a fit).

I refuse to teach her she can’t come to me and tell me her wants and needs; I might not always be able to give her what she wants when she wants it but she can ALWAYS tell me anything. 

In the end life has been hell, turned upside down, and I still have no idea how I am making it through or what I am going to do from here.  Because what I thought my plans were aren’t too promising as of today; which makes me sadder than anyone could ever get. 

I wish I could say I would be back, more often and more consistently; but I just can’t.  I barely make it through one day without bawling, so yea writing it out would probably be good, but most days I am to fuming to make coherent posts. 

I hope to be back, to be more consistent in posting, and to be better at handling things but none of those things are things I can say for certain are going to occur, unfortunately.

#SNRyanGosling — MUSIC

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Well this week has been interesting to say the least.

First, on Monday I got the OT report showing Lil Man was at about 7 months development (can you say ouch!).  Then we sent off all that information to apply for the Birth-Three program, which obviously he qualifies for.  Since he receives speech through the hospital we won’t be using them for speech, but he desperately needs OT, so we will start there.

Then I took Lil Miss and got her enrolled in pre-school since we were one of the first to turn the application, so it seems, she should start soon instead of waiting until September.  Which is awesome because she has only been asking to go to school for 2 YEARS! (I think she gets that from me :D)

Also Monday I got confirmation my orthopedic surgeon accepts all my insurance, I go this coming Monday to get a referral to see him.  I will most likely, almost certainly, will be having another surgery; this one will all likelihood will be far more extensive than the first.

We learned Lil Man had one “blip” on his EEG, and the neurologist (who specializes in kids with autism) said something like 45% of kids with autism have that “blip” but not all those actually have seizures.  (Confusing I know) So we will continue to keep an eye on him to see if the staring spells get any worse or anything then go from there.

He also placed a referral to have Del evaluated with for an AAC device, hopefully I will have that appointment made soon.

And finally, today hubby messaged me from work and said that his new manager has asked him to apply for the assistant manager’s positon because she really wants him as her assistant!!!  He will be applying, but still has to jump through all the hoops and hope nobody above her wants someone else in that position (all though they have been through 3 manager teams since he has been there about a year)…but it appears he has pretty dang good shot.

Alright, on to eye candy! This weeks picture is awesome, our family is a music family.  Lil Man loves listening to music (especially Elton John!) as does Lil Miss (her fave? Adele)–I know I am spoiled with kids who like good musical taste, I blame that on hubby and his family they are HUGE music people. 🙂

I do need a hair cut and a new pair of heels...

I don't mind if I do. Instead of waiting for me there, care to join once their asleep? 😉

Go over and check out Sunday’s  blog, link up, and read the other blogs; they are all amazing every week!

Special Needs Ryan Gosling (I’m BACK)

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EEG/EKG Updates at bottom 😀

This week has been CRAZY; well ok our house is normally crazy but it was over the top this week.

My birthday was Monday, I went to do intern hours, and had a phone interview with Social Security to discuss getting SSI for Lil Man.  Then Tuesday was Lil Man’s pre-anesthesia appointments, for his procedure tomorrow; Wednesday was an all day work day for me and received a call that my interview for next week wanted to reschedule for today. (yea, a day’s notice) So obviously today was the interview (more on that in a minute) but we also had speech this morning and snuck into OT (just a cancellation, no long term yet).

So this interview, it was great! It was in Belltown (near Pike Place Market) and is an overnight shelter for homeless women, I should know something within 10 days.

But, the best part was after parking (ugh, I hate those prices) got out and paid, on my way back to put the ticket in the window I got hit on.

A homeless guy comes up tells me I have “great legs” (thank you soccer and Tae Kwon Do) and asks if I’m single. I was ok and even flattered with that, then he asked if I had socks in my car for him and he wanted to see in the van at this point I got a little weirded out thanked him and headed off to my interview across the street.

Lil Man has been doing great, we have been sleeping from 9:30-10ish until about 9 in the morning, OMG that feels good.

Speech today went wonderful, his therapist is completely on board and willing to talk to the other SLP/behavioral specialist so we are moving ahead with her and getting materials to create a picture book and implementing it and continue to work with words.

We also got to see Melissa the OT who did his evaluation since another client canceled for today only.  We worked on playing in shaving cream (he doesn’t like his hands messy, and only plays in the tub like a pool doesn’t like hand-washing/towels, etc), feeding a puppet dog (interactive play) and he was doing great with this. He started out opening the dog’s “mouth” and then he started putting in the puppy’s “paw” (like we do with cookies, etc) and watching puppy feed himself.

It has been a great week and Lil Man (although we had a few complete meltdowns) has been a wonderfully happy boy, flapping and jumping even giggling.

But tomorrow he goes in for a sedated EEG/EKG and because we don’t have a baby-sitter I have to go by myself and hubby & Lil Miss will be staying home.  So I am bit nervous and worked up, hopefully I can stay calm enough that I can get some homework done while he’s under.  (Or, I’ll just take Ryan’s advice and lay my head right here in his lap 😉 )

 

And now, on to why you all came here Special Needs Ryan Gosling. (Thank you Sunday for hosting!)

(Ryan is such a gentleman)

(Oh man, am I blushing.)

Go over, link up with Sunday, and check out all the other fantastic Special Needs Ryan Gosling posts!

UPDATES:

11:26am

Thank you all for the well wishes about the EEG. I am so thankful to be here at Seattle Children’s instead of OHSU like last time.

The anesthesiologist is AMAZING, Lil Man’s team was communicating by e-mail, literally, all week to make this as successful and non-traumatic as possible for all of us.

So the anesthesiologist had Cars (Lil Man’s kryptonite) on cue, let him watch it the whole time (Lil Man even let Dr. Long [anesthesiologist] carry him from the pre-procedure room to the procedure room!), and then Dr. Long slipped the mask on to his face while he happily watched the movie. I was there the whole time and even helped get him laid down (he was snuggled in Dr. Long’s nap with the mask on to go to sleep :D) there wasn’t a single sniffle, hiccup, or scream.

Compared to last time I would fly from anywhere to have this team for Lil Man, they are with a doubt amazing and sensitive to his needs. Typically kids can only have 1 item [blanket, paci, whatever], Lil Man was allowed to keep his blanket, McQueen,and a paci.  They worked hard to make this successful.

I will see in about an hour how recovery is going (the procedures runs until 12:30ish) but I am sure they will do just fine with him and this trip will not scar Lil Man like the last surgery/procedure trip.

2:30pm —

It all went well for the most part, I got paged right at 12:30 pm to come back and see him in recovery.  As soon as they opened the doors to the procedure center I heard him screaming (that’s normal for him when he wakes up at anytime), we got his IV out and all the electrode leads off, and got him dressed in his spiderman ‘jamas.

That’s when I realized his blanket was gone, an orderly put it in with the hospital linen and it had already been picked up and taken away.  They are contacting the linen group telling them it is there and if they see it to send it back and they will get it to us.  But, I doubt anyone will find it, and that means we have had to implement Operation:Blanket Replacement.

I have several field operatives in Central FL (it was a blanket from hubby’s high school) looking for it, and they are under strict orders to capture the first one they see and have it transported to us (on our dime of course) to try and maintain some sense of normalcy for him, as that was his favorite blanket and he used it everynight to go to bed.

Crossing my fingers we can find a good replacement and until it can get here his attitude won’t be to bad and that he will be able to sleep without for a bit. :-/

I Am Such a Bad Blogger

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Holy crap it has been nearly a month (I have been without a computer for a while).  I am sorry, and plan on getting back into the swing things as so much has happened lately.  It might be one more week before a real post as I have some research papers and proposals due in the next 2 weeks (end of spring session).  Bare with me, I PROMISE I’ll be back.

Post-Holiday

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Holidays (Christmas especially) went far better than anticipated.  Although a few tantrums occurred it wasn’t overwhelming for Hubby and I to handle.

Today we went back to the Autism Clinic for an “Official” diagnosis.  (Because the state is ridiculous.) And saw Dr. Stobbe, he was very nice and answered a few questions I had lingering from last month’s appointment with Therese.

He has further referred Del to have an EEG (sooner than Therese thought was needed, but then again he is a neurologist so no one is arguing) and a Cardiologist due to his Breath-Holding Spells.

We have appointments for the Dermatologist (Monday) and the Audiologist (a week from Wednesday); I will be picking up the speech therapy report tomorrow to see where we need to go from there.  Also on Monday we will go and get the genetic blood testing done (since it as the hospital too).

Beyond, Lil Man; Lil Miss is doing well, still fighting potty training but I am changing tactics (she seems to want to use the adult potty vs the potty chair), and we will see how that goes.

Hubby is still working and (mostly) enjoying it.

I start my internship tomorrow, and classes start Monday 🙂 I am really excited for the Psychology of Religion class starting Monday.

That is about all for now, and I will post more as I have it (now that the computer is back up :D)

Christmas Prep

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Oh it’s that time of year. Full of family, fun, and stress.

I am almost finished with finals, the kids have now been informed it’s Christmas time (I wait until after Thanksgiving, they still don’t have the seasons figured out), and I begin worrying about presents, overwhelmed and over-stimulated kids.

This year I am more concerned then ever, we have Lil Man who has been diagnosed with autism and we are going to someone else’s house for Christmas Eve dinner.  Not to mention the obvious concern of meltdowns and overstimulation, Lil Miss doesn’t do noise well (like at all), it’s a new house to them, and I have never been there.  We have no place to take them in meltdown mode there, and we have no “breather” space (that’s what we call a timeout, prior to the bad behavior starting…if that makes sense)

And then of course my food allergies; I usually just buck up, take things with me to eat, and take allergy meds.  But, it’s still added stress to get those things ready and make sure those things are not forgotten packed.

Any suggestions from you Autism, food allergy, veteran moms would be appreciated.  Really 😀

I am starting my baking, just chocolate chip cookies today, and after I am finished with finals I am planning on doing fudge and some cupcakes.  Fudge will go into goodie bags for our mailman, garbage man, etc. just like my mom did every year when I was a kid 😛

So what are your favorite treats for Christmas? What goodies to you have to have to make it Christmas?

(Mine is fudge, we make it every year.)

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